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It's a Disease, Not a Sentence

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Dear Cheryl,

I have epilepsy, which has made my life difficult — both medically and financially. When I tell people about it and what it entails, they (friends, family, authority figures such as police officers and doctors, for example) tell me it must dictate my life. For that reason, I've chosen to focus on academic and professional goals.

Now we come to Barbara. We've never met, but I've known her for almost a decade. She lives in Pennsylvania; I live in Colorado. We speak on the phone occasionally and text almost daily. She recently told me in a text message that she's "given up on men."

I currently live with my parents, as does she. My parents think we should meet one day to see if we hit it off. When I told them what she said, my mom said, "That's because she's waiting for you." I don't buy that because I don't think women in today's culture will wait a decade for a guy to get his professional and financial situation sorted out. Does it make any sense in terms of female psychology?

Because of my medical condition, I've chosen to stay single for life. But I'm having a difficult time with the mixed messages I get from people. On one hand, they tell me I should stay in the house and not do anything. On the other, they say I should go out, try to find that special someone and get married. — Confused in Colorado

Dear Confused in Colorado,

1. Stop listening to negative people.

2. Join a support group for people with epilepsy who want to exchange information, not hold a pity party.

3. Find a supportive doctor who's committed to helping his patients live full, normal lives with as few restrictions as possible. The right support group can help you with this.

And now we come to Barbara. She hasn't really given up on men, she's just turned off because of some bad experiences. She's not "waiting" for you, but she might want to meet you. And if it doesn't work out with Barbara, there are thousands of women you could connect with. But first you have to put yourself out there.

Here's the deal: You got a bad break. You can let it define you and restrict you, and you can settle for less of a life to avoid disappointment and embarrassment.

Or you can say, I'm going to have the biggest, fullest, most wonderful life possible despite epilepsy. You can refuse to rule anything out unless it's absolutely necessary.

You're at a turning point in your life. That's why you wrote me. Act now. Don't let another day go by with negative thoughts of what you can't do filling your head. Go for broke. And stay in touch.

Dear Cheryl,

I'm the leader of an emotional abuse support group. I urge your readers to read: "Why Does He Do That? Inside the Minds of Angry and Controlling Men" by Lundy Bancroft, who worked with thousands of abusers and knows how they think.

Once victims understand what motivates abusers, they can make much better decisions for themselves and their children. (I do not make a penny off of this book.) — In the Field

Dear In the Field,

I'm happy to pass along the information. (And I'm not making a penny off of the book, either!)

Got a problem? Send it to cheryllavin@aol.com. To find out more about Cheryl Lavin, and read features by other Creators Syndicate writers and cartoonists, visit www.creators.com.

COPYRIGHT 2011 CREATORS.COM


Comments

6 Comments | Post Comment
First off, to Cheryl, Epilepsy is a disorder, not a disease; it is not contagious. Epilepsy is a physical condition characterized by sudden, brief changes in how the brain works. It is a symptom of a neurological disorder - a disorder that affects the brain and shows itself in the form of seizures..... this is taken from the www.epilepsy.ca
LW1, I have epilpsey, diagnosed when I was in my teens. The first five years after the seizures started were difficult, but once I figured out what I needed to do to stay healthy and the Dr's found the right medications for me, I've lead a normal life. The only thing I don't have is a driver's license, and while frustrating at times, I understand why. (Medication does not control my epilepsy 100%) I am married, with two beautiful children and work I enjoy. I keep my stress to a minimum, avoid alcohol (it effects my medications) and try to maintain a solid routine. I gave up the high pressure management position for a job that still challenges me, but doesn't give me the stress of management. I do have the rare seizure, but there is almost always contributing factors (illness, pain, stress). I also live with Bipolar Disorder and Disc Degeneration in my lower back. Both are not easy to live with, but that has not stopped me from doing the things I love and living a full life. These medical conditions do NOT have to be a life sentence. With the right supports, you can lead a full and healhty life!
Comment: #1
Posted by: Scorn
Fri Dec 30, 2011 7:19 AM
Confused, there is no reason for you to feel the need to remain single. The fact that you have epilepsy is in no way a deal breaker on a relationship. Frankly, I think the people who've told you that you need to hide under a rock have some very serious issues because it's crystal clear to me that they understand nothing about epilepsy.

OTOH, I feel your pain. I recall when I was fired from a new job because my boss witnessed me having a seizure. I learned from that experience not to tell most people that I have epilepsy. 1, it's not any of their business, and 2, it in no way detracts from my ability to do my job (unless I'm holding a blow torch, lol).

Cheryl is right, Confused: don't use your condition as an excuse to avoid women. A woman who truly loves you will not be scared off. She'll support you, encourage you and be ready not to freak out when you have a seizure, as you sometimes will. Take it from a voice of experience: it's not that big a deal
Comment: #2
Posted by: EdithBunker
Fri Dec 30, 2011 8:23 PM
LW#1: On the positive side, it sounds like you have parents who support your sexuality. Do you realize how lucky you are?
Comment: #3
Posted by: Madelyn
Sat Dec 31, 2011 7:31 AM
Scorn, you're an inspiration.
Comment: #4
Posted by: J
Sat Dec 31, 2011 8:29 AM
I can't see where epilepsy should be a police matter, unless it concerns a driver's license.
Comment: #5
Posted by: Madelyn
Mon Jan 2, 2012 6:25 PM
I had epilepsy as a child (from maybe age 2 until my teens). I only recall a handful of seizures, but I'm told mine were mainly petit mal. I can't recall having any significant limitations in my life due to epilepsy (and I'd been seizure-free for years before I got my driver's license). The main thing with epilepsy is control. There are tons of medications available now that can be effective in controlling the brain activity. There are surgeries and stimulators. Yes, you may still have a breakthrough seizure, but that's no reason to hide in your parents' house forever. If it makes you feel better, you can get one of those medical ID bracelets, which will let people know you have a medical condition and what to do in case you have a seizure in public. But please don't allow epilepsy to control your life.
Comment: #6
Posted by: Laura
Wed Jan 4, 2012 2:43 AM
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