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Her Grandchild is Not a Diagnosis

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Q: Last year in kindergarten, my grandson's teacher brought up the fact that she believes my grandson has ADHD. Several of our friends and I do not see it. This year, the school counselor believes he has Asperger's Disorder. I do not believe this either. He is a smart and lovable child. He can read "Green Eggs and Ham" by himself. He uses big words and knows what they mean. He gives big hugs and plays well with others.

My daughter has state insurance and has started him on meds without any testing that I am aware of (not even IQ). I believe there may be a problem, but I do not think they have it right. He can't stand continuous sounds at a certain pitch. He will start screaming "the noise is driving me crazy." I would like to see my grandson get help, but he needs the proper help. There must be other children and parents in the same situation.

Can you give me any advice on where to go or what to do? My daughter is not well off financially. It seems children are at the mercy of the school and state health care systems. Our children are our future. Can you please, please help?

A: Your letter reminds me of a poster I've seen in many airports. It shows a picture of a cute little boy and says, "He's a child, not a diagnosis." Your grandson sounds like a very nice child, but it also does sound as if he's having some real problems. It's true that sometimes there is overdiagnosing and overmedicating of children for their problems, but, of course, I couldn't actually tell you if he's been diagnosed correctly.

Children with Attention Deficit Hyperactivity Disorder (ADHD) struggle with overactivity, impulsivity and inattention.

Almost all children sometimes struggle with any of these characteristics, but if it's a disorder, they have more extreme problems that interfere with their learning in school and their behaviors at home. Asperger's Disorder may include ADHD characteristics, but it also involves serious problems with social skills and responding to and understanding others' emotions. Again, social perceptiveness and skills differ on a spectrum.

Your daughter can ask for a second opinion and further diagnostic testing for your grandson if she feels uncomfortable about the findings. You could also read more about these diagnoses to determine if there are behaviors that you didn't realize were associated with the disorders. You'll also want to notice if your grandson's new meds are making a positive difference for him at home, school and on his visits to you. You and his mother will want to be sensitive to any side effects that could take place that should be reported to his physician. Your grandson is definitely not a diagnosis, and it's apparent that you will love him just as you always have.

For a free newsletter about ADHD, send a self-addressed, stamped envelope to the address below.

Dr. Sylvia B. Rimm is the director of the Family Achievement Clinic in Cleveland, Ohio, a clinical professor of psychiatry and pediatrics at the Case Western Reserve University School of Medicine, and the author of many books on parenting. More information on raising kids is available at www.sylviarimm.com. Please send questions to: Sylvia B. Rimm on Raising Kids, P.O. Box 32, Watertown, WI 53094 or srimm@sylviarimm.com. To read features by other Creators Syndicate writers and cartoonists, visit the Creators Syndicate website at www.creators.com.

COPYRIGHT 2010 CREATORS.COM


Comments

8 Comments | Post Comment
The Grandmother is making the assumption that her grandson cannot have asperger's because she believes he is intelligent, if she would do some minimal research she would find that most children with asperger's have exceptionally high IQs and above average verbal skills.
Comment: #1
Posted by: Denise
Wed Mar 10, 2010 7:59 AM
Actually, Denise, she didn't say that he doesn't have Asperger's solely because he is intelligent. She also mentioned that he gives big hugs and plays well with others. A quick search on Asperger's would also tell Grandma that patients with that diagnosis typically have difficulty functioning socially despite their high intelligence. If he does, indeed, play well with others, as Grandma asserts, he may not have Asperger's. He's been given two different diagnoses by two different school psychologists which may indicate that he needs further evaluation, not a quick stop for pharmaceuticals. As a mother who did a great deal of research into the medications available for these disorders, Grandma has good reason to be concerned. Misdiagnosis could be detrimental to her grandson's health and future development.
Comment: #2
Posted by: Kelley
Wed Mar 10, 2010 2:49 PM
Grandma says: He can't stand continuous sounds at a certain pitch. He will start screaming "the noise is driving me crazy." Kids with autism often can't stand certain sounds or sounds at a certain level, but with everything else going for him as the grandmother says, I would rush to have a full examination by an ear, nose, and throat specialist--check hearing by an audiologist. I would also ask that the school do an educational and behavioral evaluation. An audiologist can determine if he is being distracted by background noise (figure ground problem) or something happening visually or any number of things that can affect a kid's ability to listen and sit and concentrate when he's supposed to. She needs to visit the school, sitting on the class and see what's actually going on. If he does need medication, he needs some counseling in order to understand why and how it is helping him, if it is, and some behavioral help now that he can function better. ADHD and other learning/behavior difficulties can't be cured by a pill. The medication can set up the possibility of attending or behaving better but the child need to understand he's not bad or stupid and learn behaviors that will help function better in the classroom.
Comment: #3
Posted by: BB
Wed Mar 10, 2010 5:59 PM
My son has Central Auditory Processing Disorder and had similar reactions to sound. It can only be tested in certain clinics. My son was diagnosed at House Ear Institute in Los Angeles. Good luck with your grandchild!
Comment: #4
Posted by: river
Sun Mar 14, 2010 3:09 AM
My web site http://members.cox.net/medcoms/index.html presents a non controversial way to improve health care. Please use your influence to have the congressional budget office do a cost/benefit analysis of the concept.
Comment: #5
Posted by: Joe Miller
Tue Mar 16, 2010 9:58 PM
While auditory processing disorders are often found children with Aspergers/Autism they do not necessarily go together. If state insurance is willing to pay for meds, they might be willing to pay for a visit to the child development specialist to be sure they are paying for the right meds.
Before I could get anything I had to go to a child development specialist. He didn't get it all right but got us started on the path.

One more note, even if he does not have Asperger's some of the therapies used to help sensory processing could still help him. My daughter was given a preliminary diagnosis by the schools because they have to have a bucket to treat kids. That may be what the school is trying to do, find the right bucket for him.
Comment: #6
Posted by: Mich
Mon Mar 22, 2010 11:15 AM
Not all children with asperger's have diffivulty expressing
Emotion- my daughter is sweet, gentle, & affectionate. She loves
To give hugs & kisses. But she has the social issues & all the other asperger's
Symptoms. And yes she is smart :)
Comment: #7
Posted by: KimberlyAnne
Sat Dec 10, 2011 11:52 AM
& she was officially evaluated & diagnosed by 2 different psychiatrists..
Comment: #8
Posted by: KimberlyAnne
Sat Dec 10, 2011 11:53 AM
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