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You Have to Control It, It Can't Control You

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We recently heard from Confused in Colorado. He has epilepsy, and he's allowed it to control his life so much that he believes he can never marry.

Today, we hear from people who also have epilepsy and are leading normal lives . . .

SARAH: I was diagnosed when I was in my teens. The first five years after the seizures started were difficult, but once I figured out what I needed to do to stay healthy and the doctors found the right medications for me, I've led a normal life.

The only thing is I don't have is a driver's license, and while frustrating at times, I understand why. (Medication does not control my epilepsy 100 percent.)

I'm married with two beautiful children. I do work I enjoy. I keep my stress to a minimum, avoid alcohol (it effects my medications) and try to maintain a solid routine. I gave up the high-pressure management position for a job that still challenges me, but doesn't involve the stress.

I do have the rare seizure, but there's almost always a contributing factor — illness, pain and/or stress. I also live with bipolar disorder and disc degeneration in my lower back. Neither is easy to live with, but they haven't stopped me from doing the things I love and living a full life.

Medical conditions don't have to be a life sentence. With the right support, you can lead a full and healthy life!

ELIZABETH: I, too, have epilepsy. I recall when I was fired from a new job because my boss witnessed me having a seizure.

I've learned not to tell people that I have epilepsy if it's not their business and if it doesn't detract from my ability to do my job. There's no reason for you to feel the need to remain single. The fact that you have epilepsy is in no way a deal breaker on a relationship. Frankly, I think the people who've told you that you need to hide under a rock have some very serious issues because it's crystal clear to me that they understand nothing about epilepsy.

Don't use your condition as an excuse to avoid women. A woman who truly loves you will not be scared off. She'll support you, encourage you and be ready not to freak out when you have a seizure, as you sometimes will. Take it from a voice of experience: it's not that big a deal

LILY: I had epilepsy as a child, from two till my teens. I only recall a handful of seizures, but I'm told mine were mainly petit mal. I can't recall having any significant limitations in my life due to epilepsy. (I'd been seizure-free for years before I got my driver's license).

The main thing with epilepsy is control. There are tons of medications available now that can be effective in controlling the brain activity. There are surgeries and stimulators. Yes, you may still have a breakthrough seizure, but that's no reason to hide in your parents' house forever. If it makes you feel better, you can get one of those medical ID bracelets, which will let people know you have a condition and tell them what to do in case you have a seizure.

But please don't allow epilepsy to control your life.

Got a problem? Send it to cheryllavin@aol.com. And check out my blog www.talesfromthefront.com. To find out more about Cheryl Lavin, and read features by other Creators Syndicate writers and cartoonists, visit www.creators.com.

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Comments

1 Comments | Post Comment
Just wanted to say something about the medic-alert bracelets.

There are many options now for these types of bracelets (I have one due to my coumadin use). They can be very stylish, and most people just notice that I have a pretty bracelet on (though it's clear there's a medical symbol on the faceplate of my bracelet when anyone looks, which is part of what medical professionals are required to do as part of ER protocol). I was also able to choose what I wanted engraved on the plate of my bracelet, so I have my name, the fact that I'm on coumadin, and the cell phone number for my mother, who has my health care proxy.

Hopefully, I'll never have to put my bracelet to use, but I'm glad it's there!
Comment: #1
Posted by: Janie
Fri Jan 6, 2012 7:01 AM
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